I’m often the identified person who is expected to attend to someone else with a hearing problem. Yes, I do have a lot of information, but most people don’t know that. What I am is up front about my hearing loss and ask for access so the hearies think I’m the expert and I’ll help everyone else with hearing loss because I have some vast store of insider knowledge and know just what to do.
I know about my hearing loss. I don’t have insider information on anyone else’s hearing loss. I’m not an audiologist nor an ear doctor, just one more deafie in the world trying to live my life and maybe help a few other people along the way.
I recently met a guy with bilateral hearing loss that is probably in the serious range, maybe headed towards profound. (See chart below) It took a few encounters, but it has become apparent to me that his loss isn’t just one of not being able to hear at a normal volume, he is missing chunks of tonality. And like many older people with hearing loss he’s got problems with upper registers, which includes women’s voices, birds, dripping faucets, and fricatives such as the /f/ in the word fine. It creates conundrums of being able to hear a phone ring but barely able to distinguish the conversation.
Unfortunately, many of the older late deafened are not tech savvy and are at a distinct disadvantage. Many have no hearing aids, have no idea about any services to help with hearing aids, don’t know the difference between analog and digital aids, and some don’t have computers, let alone smart phones, and rarely do they know ASL. The gent I met has no hearing aid, no smart phone, no cell phone, and barely has a functioning desktop computer. He also doesn’t have a clue about taking a pencil and pad of paper with him.
He has not acted on information I emailed to him; when I’ve asked about his follow up I get non-sequiturs. That tells me he is guessing at what I’m saying. Next time I know I’ll be seeing him I’m going to take my iPad and type in what I’m saying so he can understand me. Maybe I can show him that a pencil and paper or a tablet can enhance his ability to understand conversations. That’s about the limit of what I can do unless he follows up.
So, hearies, we deafies really don’t have an easier time of it with another deafie than you do. Not unless we both sign or we both understand a least something about coping with hearing loss through things like shared knowledge about equipment that can make life easier. One thing I do have that many fully hearing people don’t is nearly infinite patience dealing with a late deafened adult trying to cope.
Even if I do know about services and equipment it only goes so far because the other deafie needs to be able to gain my knowledge and then act on it. Denial is a wide river and people seem to be afraid of moving out of a comfort zone, no matter how uncomfortable that zone has become.